我的中国家庭从未谈及过精神疾病

my Chinese side of the family never spoke about mental illness

 

PABLITO,现年66岁的波士顿人,现居住于夏威夷的檀香山 | PABLITO, A 66-YEAR-OLD CHINESE NATIVE OF BOSTON NOW RESIDING IN HONOLULU, HI

This is his response to the author behind our second story:

Dear 33-year-old Chinese woman,

How brave of you to express and reveal yourself, particularly in an asian newspaper.

I, too, am mentally challenged Eurasian man. My diagnosis seems to change quarterly or yearly and my present psychiatrist doesn’t quite know what to “label” me as. Frankly, I’m not too worried about that. I think I lean more towards being schizoid affective. None of my medical staff ever administered shots to me since I was officially diagnosed in 1993. I’ve been taking my meds in pill form.

As I think about it, my Chinese side of the family never spoke about mental illness.

That even includes some of the other Chinese people I had lived with. Now in my 60s, about ten years ago, I acquired, by chance, documentation from Boston City Hospital that my maternal mother was schizophrenic. My Chinese half-sister (20 years my senior) knew of my mother’s background. That’s probably one reason why she adamantly refused to discuss her with me. When I mentioned to her that I was locating my “lost” mother, she nearly threw a fit. I went ahead anyway.

I think my illness started in my early 20s. I had an episode one morning. Walked at least 10 miles along a stretch of highway to the airport in Kauai, Hawaii. All I wore were a tank top, shorts and flip flops. Somehow, I knew to tuck into my pockets my airplane ticket and wallet. Landed in San Francisco and, luckily, a friend met me at the arrival gate.(My best friend on Kauai tipped my San Francisco friend off.) If it hadn’t been for him, I would’ve continued onto Boston. It was around Thanksgiving. Good planning huh?

Since then, I’ve worked mainly temporary jobs, as I couldn’t tolerate being in the same seat, the same office, and performing the same task day in and day out. Yes, I “committed” myself to a few “permanent” jobs, but the same irritating issues arose. I always hated when someone asked me about my family.

Throughout the ensuing years, my mental problems persisted, but I didn’t know a thing about seeking mental help. I had no one to mentor me.

One of my landlords, whom I cooked suppers for after my 9-to-5 job, thought I was eccentric. The thought of my seeing a shrink for the first time exasperated me. To think, for so many years, I had joked about mental illness. A co-worker warned me that, if I misbehaved, she’ll send me to a state hospital. But, when I quit my civil service job in Boston and moved back to San Francisco, I was unable to find suitable work. My deportment deteriorated. I found myself talking to myself out loud everyday.

After six months (when my apt. lease expired), I went to San Diego and stayed at a pension hotel. My roommate dragged me to a mental health clinic where a psychologist interviewed me. “Get this prescription filled and see you next month,” he said. What was I to do in the mean time? To make this story short, a taxi driver, who listened to my “problems,” recommended me to return to Honolulu, as one of my best and trustworthy friend lives. There, I managed to qualify for a grant to attend a business college. What a waste. I flunked accounting, but my best friend’s boss hired me anyway. Within six months, the firm “eliminated my position”. That was the first time I collected unemployment. I was physically a wreck (I dressed like a bum) and I had cut my hair with a pair of rusted scissors while standing over a waste barrel.

Out of sheer desperation, I voluntarily went to another mental health clinic. I saw their ad posted on a university bulletin board. I thought, what the heck, I’ve got nothing to lose, I’m nearly 40. First they screened me over the phone. I guess I passed as they gave me an appointment to see a psychologist. That interview lasted 2-3 hours. Was I drained. Saw the psychiatrist that same week. Though I had no health insurance and limited funds, the clinic provided all my meds until I qualified for Medicaid. The clinic saved my life. When I returned later, the doctor made a remark,

“How did you ever make it all those years?”

Therapy, whether one-on-one or in groups, did not work for me. Particularly the ones that pitch the religious talk. I’ve been in and out of Club Houses. They’re safe places for mentally ill people to go and socialize.(There are Club Houses throughout the states. I believe most are operated by the state government.) However, when the Club Houses got wind of sending their members to work, I checked out. None of the jobs, janitorial, return merchandise clerk, interested me. Instead, I began to read and write. Took a few classes at a community college. Volunteered here and there.

How am I going to end this “book”? I’m so tired writing all the above. It’s late at night. Time for bed. Don’t think I’ll finish this, but you should get the drift.

I’m doing better these days. Meds need to be adjusted time to time, but nothing major. I’ll say one thing, many people are so paranoid when they are dealing with a mentally ill person.

As long as the individual is under the care of a professional health worker (usually a psychiatrist who can legally prescribe meds) and takes his/her meds as prescribed, things should be fine. Treat us as an adult, not a child. I can’t stand it when someone uses child talk.

I’m currently working on my memoir. So far, I have written two books. There might be book three, which would summarize the first two. Unsure which route I should take, publishing house or self-publishing. Anyone have ideas?

这是他对我们第二个故事的作者的回应:

33岁的中国女性

在一个面向亚裔的的媒体上,您能表达和展现自己是多么勇敢啊。

我也是一个精神方面受挑战的欧亚混血。我现在的心理医生对我的诊断似乎每季或每年都会变化而且并不确定该如何将我确诊归类。坦白的说我并不太在乎。我认为我应该是精神分裂症患者。自从1993年被确诊以后我一直在服用药物。医务人员从来没有给我打过针。

我意识到我的中国家庭甚至包括我的一些其他中国室友从未谈及过精神疾病。

现在我60多岁,大概十年前左右,我偶然地从波士顿市立医院获得了有关我的生母患有精神分裂症的消息。我的中国同父异母姐姐(大我20岁)知道我生母的背景。这可能是她坚决不与我讨论我生母的原因之一吧。当我向她提到我正在寻找我“失散”的母亲时她差一点就生气了。但我还是去了。

我认为我的疾病始于20几岁。某天早晨我只穿着背心与短裤和人字拖,沿着一条高速公路至少走了10英里到达夏威夷考艾岛的机场。不知何故,机票和钱包我都有塞进口袋。幸运的是降落在旧金山后一个朋友在机场门口遇到了我。(我在考艾岛上最好的朋友向我的旧金山朋友发送了消息)如果不是他我后来不会去波士顿。事情就发生在感恩节前后如同计划好的那样,对吧?

从那以后,我主要从事临时工作,因为我不能容忍每天都在同一个座位,同一间办公室并做同样的事情。是啊!我“愿意”从事一些“永久性”工作,但是同样烦人的问题发生了——我总是很讨厌别人问起我的家庭。

在随后的几年中我的心理问题一直存在,但是我完全不知道应该如何获得帮助。没有人来引导我。过去在我每天完成朝九晚五的工作后,我还为我的一个房东做饭。他认为我是一个怪异的人。这是有史以来看心理医生这件事第一次惹怒了我。这样想这么多年以来我都一直在拿心理疾病说笑。一个同事警告我说如果我有任何行为不端,她就会把我送去州立医院。但当我辞去在波士顿的人事工作并且搬回三藩市以后我没能找到合适的工作。我病情愈加恶化每天都在自言自语地喊叫。

六个月以后我的房租到期了。我搬去圣地亚哥住在了一个养老宾馆里。我室友拉着我去了一个心理诊所,那里的心理医生对我说:“服完这次的药,我们下个月再见吧。”我当时在干什么呢?简而言之,一个听了我故事的出租车司机建议我回檀香山。因为我的一个值得信任的好朋友也住那儿。然后我争取到了一笔足够我上商学院的补给金。真是白费功夫!我没通过会计考试但是我的好朋友的老板还是雇了我。不到六个月公司就移除了我的职位。这是我人生第一次被解雇。我当时一团糟(穿得也像一个流浪汉)甚至在垃圾桶旁用生锈的剪刀理发。

我当时真的绝望了,自愿去了另一个心理诊所。我在大学的宣传板上看到他们的广告,当时就在想,这有什么?反正我已经没有什么可以失去了我都快四十岁了。他们先是通过电话面试进行筛选,我想我通过了并争取到了一个去看心理医生的机会。那是一个两到三小时的面试,面试结束后,我已经精疲力竭了。在同一周还看了心理医生。虽然我没有任何健康保险,也没钱,但诊所还是因为我满足美国退休医疗保险的条件免费给我提供了所有的药品。这个诊所救了我的命。后来当我回去见医生的时候,他对我说:

“这些年你都是怎么熬过来的?”

谈话治疗,不管是一对一或者以群体形式的都对我不管用,特别是那些侧重宗教的主题的。我一直在精神康复会所进进出出,它们对心理受过创伤的人群是一个安全的社交地点。(我觉得精神康复会所在美国全境范围内都有,应该是州政府运营的)然而当他们派遣我工作的时候我退出了。我对一切在那边的工作:安保或者退货职员什么的都不感兴趣。相反的,我倒是开始读书写作了。在一个社区大学上了几节课或者在某些个地方当志愿者。

我该怎么结束这个故事呢。写完这些的时候我都累坏了,这边已经是深夜。是睡觉的时间了。我可能写不完所有的故事但是你大概能知道我想要表达一些什么。

我这些日子已经好多了,用药的剂量也一直在被调整,但没有什么特别的。有一件事是我想说的,很多人都对于和精神病人相处这件事特别偏执。其实只要病人在专业病护人员(一般精神科医生有处方权)的照顾下按时吃药,事情就好多了。把我们当成成人而不是小孩来看待,我最不能忍受的就是别人用对小孩子说话的语气来跟我交流。

我现在在筹备我的回忆录。至今我已经写了两本书了,可能还会有第三本,用来总结前两本的。关于这些书现在我还不清楚会怎么做,是自我发行还是通过出版社,有人有好意见吗?