让生活重归于掌控之下:我的心路历程

I THOUGHT I WAS IN CONTROL, BUT I WASN’T

 

主人公是一位来自NORTHBOROUGH的33岁女孩 | 33 YEARS OLD, FROM WORCESTER MA

CW: ABUSE

I thought I was in control, but I wasn’t.  The gripping schizophrenia and the intermittent psychosis were front and center in my experiences with everyday life.  They were consuming the way I experienced reality, and they were calling the shots. 

I thought my life was going along perfectly fine in my early twenties when I realized that I had mental illness.  In the years after graduating from college, it was PTSD, or post-traumatic stress disorder, that prevailed in my young experiences of early adulthood.  I would get flashbacks of a cold, emotionally distant, sometimes physically violent father figure berating me, or I would get panic attacks so badly that I did not know how to cope or press on.  The mental illness was draining because that was all I experienced of life.  The PTSD gradually faded until the flashbacks resolved by themselves, but it took about five years for that to happen.  I thought I was in the clear of mental illness, but I wasn’t.  That was just the beginning.

It was the year 2017 and I found myself just at the start of my thirties.  I was in a new place in life, in the middle of a graduate pharmacy degree program near my home that I was excited about and eager to finish.  I was living with my parents to save money on rent.  I thought my days of mental illness were behind me, having lived through PTSD and the horrible flashbacks that protruded themselves on my consciousness.  But I was about to experience something even more terrifying.  It was early summer when I started to experience the onset on schizophrenia and psychosis.  The ordeal was so bad that I made the decision to take a year off from school to focus on my recovery.  At my worst, I thought the government was spying on me and out to get me.  I thought planes that were flying overhead of my house were shooting X-rays and beams of energy down that were damaging my body and weakening my organs.  I thought that a minor altercation with a roommate I had in Florida two years ago was still alive and fresh and that she was stalking me.  I thought everyone was stalking me.  Conspiracies were everywhere.  I thought I had a secret half-brother that my mother didn’t tell me about.  I was hearing voices that I thought were from God, telling me to do certain things or avoid certain people.  It was all very confusing, scary, and upsetting.  It was devastating to my parents, too, when they saw how sick I was and how my mind wasn’t functioning properly.  They told me to seek professional medical help right away.  They brought me to the hospital, where I was admitted to the emergency room and then transferred to the psych ward.  There, doctors calibrated my medicine until they found the right one for me to take that would calm my symptoms of psychosis and schizophrenia.  It took two rounds of hospitalization that year for me to get the adequate care and help that I needed, and for me to be on the right medications.  During my course of schizophrenia, doctors have commented that I was “gravely ill” and that it was “a serious illness.”  Finally, though, I met one doctor who took a chance and prescribed me a monthly injection of an antipsychotic that allayed the schizophrenia and kept the menacing symptoms of out-of-control thoughts at bay.  I have my life to thank for that doctor.

Today, my life is much better controlled now that I am on the monthly injection of medication.  I returned to school and am about the graduate from my program with a doctorate degree.  Some people might cringe at the thought of getting a monthly injection, but it is not that bad.  The nurse comes right to my house and the injection is usually quick and not too painful.  Some people, especially from an Asian background, might also think of my situation with stigma.  To me, getting well was the most important part of the process, and one with such great impetus that getting over the stigma of having mental illness was overcome rather quickly.

I am fortunate to have supportive parents who want to see me at my best and overcome mental illness.  They never said I was weak or made me feel ashamed of my schizophrenia and psychosis.  They just wanted me to get the best, proper care so that I could recover.

I could not have recovered without their guidance, or without the doctors I met at the hospitals who would not give up until they found the right medication for me.  Therapy, too, was a cornerstone in my recovery.  At school and in the clinic, I met with therapists and counselors who were sympathetic to my situation and guided me to the right mindset with the ultimate goal of recovering from schizophrenia.

So why am I sharing my story? I want to inspire others who might be in a similar situation to seek help and give them hope that recovery is possible.

You have to surround yourself with the right people, and be brave enough to ask for help.  These people should be patient, caring, loving, and supportive.  Having mental illness is hard enough in and of itself, suffering in silence and being alone makes it that much harder.  I also want to reduce the stigma associated with having mental illness.  I know in the Asian culture, mental illness is not really talked about and people suffering with it can feel like they are isolated.  I want you to know that there are good support systems out there, starting with your doctors, psychiatrists, psychologists, therapists, and other mental health workers.  They are specially trained for this sort of hardship and will guide you to a better life.  They will encourage you to have an open dialogue about mental illness, one that is honest and truly reflective of where you stand right now.  If you believe in yourself, you will find that you have the courage to speak out about your mental health condition today and get help if you need it!

 

我以为我能掌控自己,但事实并非如此。间歇性的思维障碍已成为我日常生活的主宰。

当我在二十多岁,以为我的人生将会顺风顺水时,我发现自己患上了精神疾病 – 创伤后应激障碍(PTSD)。那是大学毕业后的初期,刚刚步入成年。我脑海常常会闪忆起那冷漠,情感上疏远,且偶尔会有些暴力的父亲的责骂;我会陷入极度的惊恐而不知如何应对。那无情的精神疾病充斥着我的生活,使我身心疲累。随着闪忆情况的减少,创伤后应激障碍也逐渐地消失了,但这却用了整整五年。当时,我以为我已在精神疾病的摧残里得到了解放,但是万万没想到的是这竟然只是个开始。

2017年,我已三十出头。那时的我,在我的人生里处于一个新的阶段-我正在我家附近就读一个研究生药剂系学位,并且非常期待完成这个学位。为了节省钱,我和我的父母一起居住。那时的我,以为自己已经和患有精神疾病的日子分道扬镳,那些因创伤后应激障碍而常常闪现在我的意识里的回忆及非常煎熬的体验似乎都成了过去。但出乎预料的是,我接下来体验的是更恐怖的经历。还记得我精神分裂和思维失调的首次发病是在一个初夏。那痛苦的经历严重得让我迫不得已暂时把学业延缓了一年,专注于治疗。最坏的时候,我有时会以为政府在监视我,要把我抓起来加害于我;有时,我会以为飞过我家的飞机为了残害我的身体和弱化我的器官而在发射放射线和能量束;有时,我会以为两年前在佛罗里达州和室友的轻微争吵仍然存在,而室友也因此跟踪我,生我的气,并伺机报复;有时,我会以为每个人都在跟踪我,四处都充满着别人不知道的阴谋。再有时,我相信我有一个同母异父的兄弟,但妈妈从来没有告诉过我。而这秘密到了现在才开始慢慢地揭晓。另外一些时候,我以为听到一些来自天国的声音,告诉我做某些事情或回避某些人。这一切都令我感到困惑,害怕,以及懊恼。当我的父母看到我病情的严重性和我被一些奇怪的想法所困扰,他们也觉得非常心疼。他们劝我必须立即寻求专业的医生帮助。他们把我带到医院,先入住急症室,再由那转入精神科病房。在精神科病房里,医生经过了一系列的药物调整,终于找到了适合我的能够缓解思维失调的药物。那一年,我一共住院治疗了两回。在我患有精神分裂的期间内,医生们都告诉我说,依我的病情而言,我病得“很严重”以及我患上的病是个“很严重的疾病”。值得庆幸的是,我终于遇到一位肯冒险并给我配了只需每月注射一次的抗精神病药物的医生。此药让精神分裂症状远离了我,也让那些因病而无法控制且如噩梦般地困扰消失。我一辈子都衷心地感谢那位医生。

如今,我继续接受那个每月注射一次的药物,而我的生活也重归于我的掌控之下。我已回到学校,正准备博士学位毕业。有些人可能会因每月注射药物而觉得畏缩,但其实并没想象中那么坏。以我为例,每次都会有护士到我的家来帮我注射,那过程不长也不痛,很快就完成了。有些人,尤其是像我一样的亚裔,可能对精神疾病有一种羞辱感,他们也会用这么一种偏见来看待我。但对我而言,最重要的,还是我病情的改善。至于因患有精神疾病而存在的羞辱感,只要拥有坚强的毅力,必定能够在短时间内克服。

 

我很庆幸拥有支持我的父母。他们都想看到我战胜精神疾病,回到我的最佳状态。他们不曾批评我,不会说我很懦弱,也不曾让我因精神分裂和思维失调而感到羞耻。他们只想让我得到最好的以及最正规的治疗,让我能够从病情中康复。若没有他们的支持,或者没有在医院里遇到那些不轻易放弃而坚持帮我找到正确药方的医生们,我觉得我必定无法从病情里康复。当然,心理辅导也是我康复里重要的一环。在我的学校以及医院诊所,我遇到的治疗师和辅导员都非常同情我的状况,引导我端正心态,最终达到精神分裂症康复的目标。

我为什么会在这分享我的故事呢?

我想鼓励那些可能处于和我一样状况的人寻求帮助,也想给你们希望,让你们知道从病情中康复是有可能的。你们只需要有那些有耐心,有爱心,以及愿意支持你们的亲人与朋友环绕在你们的身边,然后勇敢地去寻求帮助。患有精神疾病已经是一件非常困难的事,一个人暗地里独自默默地承受将会使事情变得更困难。我也想呼吁大家减低对于精神疾病的羞辱感。我知道在亚裔的文化里,精神疾病是个不经常被探讨的话题,以致精神疾病的患者们觉得被排斥。我想让你们知道,其实,有很多专业的资源可以提供帮助,包括精神科医生,心理学家,治疗师,社会工作者等等。他们都接受了特殊的训练,非常了解你们内心的挣扎与痛苦,能够引导你们走向一个更好的生活。他们会鼓励你们,并与你们就精神疾病进行坦诚的对话。这种对话会帮助你们更好的了解内心此时所处的阶段。他们会鼓励你们相信自己,积极配合适当的治疗,最终达到康复的目标,让生活重归于你们的掌控之下。